Experience of Psychological Distress: A Qualitative Inquiry into Mothers of Children with Autism Spectrum Disorder

In the present competitive world, raising a child with autism spectrum disorder (ASD) is not easy, and it demands lifelong commitment, dedication, and many challenging situations. There is ample proof that caring for a son or daughter with autism is a stressful, complex, and tiring experience for primary caregivers, especially mothers. Therefore, the study aims to explore the living experience of mothers of children with autism spectrum disorder who are affected by symptoms of psychological distress in Kerala, South India. The participants’ lived experiences were thematically analyzed using Braun and Clarke’s procedure. Based on their high score on the psychological distress scale, eight and six mothers of children with ASD were selected for in-depth semi-structured interviews and focus group discussions, respectively. The qualitative study results explain the personal experiences of mothers caring for a child with ASD and the factors that contributed to their psychological distress. In the analysis, physical, psychological, family, social, spiritual, and existential issues were the major themes found in the inquiry. The study result can be used by mental health professionals, special educators, and policymakers to understand and deal with the unique needs of mothers who serve as primary caregivers for their children with ASD.