Indian Journal of Health and Wellbeing

Open Access Open Access  Restricted Access Subscription Access
Open Access Open Access Open Access  Restricted Access Restricted Access Subscription Access

Exploring Differences with Reference to Quality of Life and Coping Styles among Caregivers of Patients Suffering from Thalassemia Major on the Basis of Demographics of the Caregivers


Affiliations
1 National Institute of Psychology Quaid e-Azam University, Islamabad, Pakistan
2 Department of Clinical Psychology Kinnaird College for Women, Lahore, Pakistan
     

   Subscribe/Renew Journal


Approximately nine million carriers of B- thalassemia have been found in Pakistan which has made it the most genetically common disease in the country. The objective of this research was to explore the differences with reference to quality of life and coping styles among caregivers of patients suffering from thalassemia major on the basis of demographics of the caregivers. The sample for the present study consisted of 202 (Men=102; Women“100) caregivers of patients suffering from thalassemia major. Data was collected from caregivers of patients suffering from thalassemia major from two different institutes i.e. Thalassemia center, Rawalpindi and Fatimid foundation, Lahore. Urdu versions of World Health Organization Quality of Life Scale-Brief and Brief Cope were used. One way Anova and Post Hoc analysis were run to fulfill the obj ective of the study. Results of the study showed significant differences on the basis of demographic variables that included age, education, monthly income and family system.

Keywords

Thalassemia, Quality of Life, Coping Style, Caregivers.
Subscription Login to verify subscription
User
Notifications
Font Size


  • Akhtar, M. (2005). Coping strategies and its relationship with stress and time demands among university students. Unpublished M.phil Thesis. National Institute of Psychology, Quaid-e-Azam University, Islamabad.

  • Andrews, F. M. (1974). Social indicators of perceived life quality. Social Indicators Research, 1,279-99.

  • Azam,F. (2009). JOO, 000 Pakistanis suffering from Thalassemia. The Nation, 5.

  • Brody, E.M., Kleban, M.H., Johnsen, P.T., Hoffman, C., & Schoonover, C.B. (1987). Work status and parent care: A comparison of four groups of women. The Gerontologist, 27,201-208.

  • Carver, C.S., Scheier, M.F., & Weintraub, J.K. (1989). Assessing coping strategies: A theoretically based approach. Journal of Personality and Social Psychology, 56, 267-283.

  • Canam & Acorn (1999). Quality of life for family caregivers of people with chronic health.problems. Rehabilitation Nursing, 24{5), 192-196.

  • Fisman, S., Wolf, L., Ellison, D.,& Freeman, T. (2000). A longitudinal study of siblings of children with chronic disabilities. Canadian Journal of Psychiatry: Revue CanadiennedePsychiatrie, 45(4), 369.

  • Hussain, A., & Juyal, I. (2007). Stress appraisal and coping strategies among parents of physically challenging children. Journal of the Indian Academy of Applied Psychology, 33(2), 179-182.

  • Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.

  • Lodhi, Y. (2003). Economics of thalassemia management in Pakistan. In Thalassemia Awareness Week, Ed. Ahmed S. Friends of Thalassemia.

  • McCubbin, M. A., &McCubbin,H. I. (1991). Family stress theory and assessment: The resiliency model of family stress adjustment and adaptation. In H. I. McCubbin and A. Thompson (Eds.), Family assessment inventories for research and practice (pp. 3-31). Madison: University ofWisconsin.

  • Raphael, D., Renwick, R., Brown, I., & Rootman, I. (1996). Quality of life indicators and health: Current status and emerging conceptions. Social Indicators Research, 39, 65-88.

  • Trehan, A., Sharma, N., Das, R., Bansal, D., & Marwaha, R.K. (2015). Clinic investigational and demographic profile of children with thalassemia major. Indian Journal of Hematology and Blood Transfusion, 31(1), 121-126. doi:10.1007/sl2288-014-0388-y

  • Weatherall, D.J. (2001). The thalassemias, hi B. Beutler, M.A. Lichtman, B.S. Coder, T. J. Kipps, and S. Seligsohn (Eds.), Williams hematology (6* ed., pp. 562-564). New York: McGraw-Hill.

  • World Health Organization (2003). Investigating in mental health. Geneva, World Health Organization.

  • Weatherall, D.J., & Clegg, J.B. (2001). Inherited hemoglobin disorders: An increasing global health problem. Rm// World Health Organ, 78,704-712.


Abstract Views: 360

PDF Views: 1




  • Exploring Differences with Reference to Quality of Life and Coping Styles among Caregivers of Patients Suffering from Thalassemia Major on the Basis of Demographics of the Caregivers

Abstract Views: 360  |  PDF Views: 1

Authors

Saira Majid
National Institute of Psychology Quaid e-Azam University, Islamabad, Pakistan
Ayesha Zafar
Department of Clinical Psychology Kinnaird College for Women, Lahore, Pakistan

Abstract


Approximately nine million carriers of B- thalassemia have been found in Pakistan which has made it the most genetically common disease in the country. The objective of this research was to explore the differences with reference to quality of life and coping styles among caregivers of patients suffering from thalassemia major on the basis of demographics of the caregivers. The sample for the present study consisted of 202 (Men=102; Women“100) caregivers of patients suffering from thalassemia major. Data was collected from caregivers of patients suffering from thalassemia major from two different institutes i.e. Thalassemia center, Rawalpindi and Fatimid foundation, Lahore. Urdu versions of World Health Organization Quality of Life Scale-Brief and Brief Cope were used. One way Anova and Post Hoc analysis were run to fulfill the obj ective of the study. Results of the study showed significant differences on the basis of demographic variables that included age, education, monthly income and family system.

Keywords


Thalassemia, Quality of Life, Coping Style, Caregivers.

References