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Quality of Life of Parents of Individual with Autism, Cerebral Palsy and Mental Retardation in India


Affiliations
1 Department of Speech Language Pathology, All India Institute of Speech and Hearing, Mysore, Karntaka, India
2 Lok Nayak Hospital, New Delhi, India
     

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The study aimed to evaluate the QOL of parents of individual with AD, CP and MR in India. It looked into the QOL of parents across socioeconomic class (SEC). A total of 240 parents (120 mothers and 120 fathers) of 120 children with AD, CP and MR were compared with 82 parents (40 mothers and 42 fathers) of 42 age matched neurotypical children. All participants belonged to upper, upper-middle, lower-middle, and upper lower SEC. World Health Organization Quality of Life (WHOQOL) BREF-Hindi was used to assess the different parameters of QOL. Significant effects were found for the diagnosis parents and SEC on the dependent measures of QOL. MR group perceived the QOL to be least impaired whereas the AD group perceived the most impaired across all the parameters. Father of AD, CP and CG perceive significantly better QOL than mothers. In addition, significant differences were found between SEC for AD and CP on some QOL' domains (AD: psychological and environment; CP: psychological). A family with developmental disabilities especially with low SEC requires urgent attention. Special mother of children with developmental disabilities needs more attention and support.

Keywords

Quality of Life, Autism, Mental Retardation, Cerebral Palsy.
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  • Quality of Life of Parents of Individual with Autism, Cerebral Palsy and Mental Retardation in India

Abstract Views: 400  |  PDF Views: 0

Authors

Navnit Kumar
Department of Speech Language Pathology, All India Institute of Speech and Hearing, Mysore, Karntaka, India
C. D. Santosha
Department of Speech Language Pathology, All India Institute of Speech and Hearing, Mysore, Karntaka, India
Priya Joseph
Lok Nayak Hospital, New Delhi, India

Abstract


The study aimed to evaluate the QOL of parents of individual with AD, CP and MR in India. It looked into the QOL of parents across socioeconomic class (SEC). A total of 240 parents (120 mothers and 120 fathers) of 120 children with AD, CP and MR were compared with 82 parents (40 mothers and 42 fathers) of 42 age matched neurotypical children. All participants belonged to upper, upper-middle, lower-middle, and upper lower SEC. World Health Organization Quality of Life (WHOQOL) BREF-Hindi was used to assess the different parameters of QOL. Significant effects were found for the diagnosis parents and SEC on the dependent measures of QOL. MR group perceived the QOL to be least impaired whereas the AD group perceived the most impaired across all the parameters. Father of AD, CP and CG perceive significantly better QOL than mothers. In addition, significant differences were found between SEC for AD and CP on some QOL' domains (AD: psychological and environment; CP: psychological). A family with developmental disabilities especially with low SEC requires urgent attention. Special mother of children with developmental disabilities needs more attention and support.

Keywords


Quality of Life, Autism, Mental Retardation, Cerebral Palsy.