Coping with Disability - Suggestions to Institutions

The Guest Editorial on 'Rare diseases need our attention' by Katoch et al. struck a sympathetic chord with me, as I have been physically disabled during the last couple of years on account of a rare progressive neuro-degenerative disorder. I have received kindness and support in abundant measure from doctors who have treated me, colleagues, students and, of course, family. That has enabled me to continue with my scientific and related academic activities, although at a slower pace. In spite of the strong protective ring around me, the physical and emotional stress resulting from the disability has been substantial. The stress would be much worse for those disabled persons who are not fortunate to have a protective ring like I have.