International Journal of Nursing Education

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Conceptual Framework for Quality Care among Clients with Sickle Cell Disease through Nurse-Led Information Desk


Affiliations
1 Assistant Professor, Department of Adult Health and Critical Care, College of Nursing, Sultan QaboosUniversity, Muscat
     

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Sickle cell disease (SCD) is an inherited disease caused by an abnormal type of haemoglobin. It is one of the most common genetic blood disorders in the Gulf region, including Oman. The disease progresses through remissions and exacerbations and its intensity ranges from intense pain episodes to multi-system failure requiring admissions in the intensive care units (ICU). Many of these patients require frequent contact with the healthcare system and often find it difficult, or even impossible, to coordinate with all the required supportive services (physiotherapist, occupational therapist, dietician, etc) without assistance. Nurses are uniquely qualified to assume the responsibility of patient care coordination. The needs of SCD patients are diverse and comprises of pain management, transfusion&chelation therapy compliance, preventive of primary care issues and education. A Nurse-led information desk will serve as a useful vehicle in disseminating and modulating these issues. This store house of information aims at improving the Quality of Life among the SCD patients and also envisions at reducing the incidence of SCD in Oman. This paper conceptualizes the Nurse-led information and highlights the significance of such a structure in helping patients and their families manage the daily needs of living with a chronic disease. The conclusion emphasizes on the urgent establishment of this information desk to provide education and coordination services for the quantitative and qualitative improvement in the life-expectancy of patients with SCD in Oman. The empowering of the SCD patients and their communities will reflect in decreased re-hospitalizations and cost containment for the health care industry, which are the essence of quality care management.

Keywords

Nurse-led Information Desk, Clinical Nursing Practice, Sickle Cell Disease, Quality Care, Oman
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  • Bender MA, Hobbs W. Sickle Cell Disease. In: Pagon RA, Bird TD, Dolan CR, Stephens K, Eds. GeneReviews [Internet]. Seattle (WA): University of Washington, Seattle, 2012

  • Al-Riyami A, Ebrahim GJ. Genetic blood disorders survey in the Sultanate of Oman. J Trop Pediatr 2003; 49:i1–20.

  • Alkindi S, Al Zadjali S, Al Madhani A, Daar S, Al Haddabi H, Al Abri Q, et al. Forecasting hemoglobinopathy burden through neonatal screening in Omani neonates. Hemoglobin 2010; 34:135–44.

  • Chiang EY, Frenette PS. Sickle cell vaso-occlusion. Hematol Oncol Clin North Am 2005; 19:771–84.

  • Jaiyesimi F, Pandey R, Bux D, Sreekrishna Y, Zaki F, Krishnamoorthy N. Sickle cell morbidity profile in Omani children. Ann Trop Paediatr 2002; 22:45–52.

  • Al-Riyami AA, Suleiman AJ, Afifi M, Al-Lamki ZM, Daar S. A community-based study of common hereditary blood disorders in Oman. East Mediterr Health J. 2001; 7(6):1004-11.

  • Davies SC, Oni L. Sickle Cell Disease Screening Programs. Disease Management and Health Outcomes. 2001; Vol 9(6): 295-304

  • Petrou M, Brugiateli M, Old J, et al. Alpha Thalassaemia Hydrops Fetalis in the UK: the Importance of Screening Pregnant Women of Chinese, other South East Asian and Mediterranean Extraction For Alpha Thalassaemia Trait. British Journal of Obstetrics and Gynaecology. 1995; Vol 92:354-7

  • Chandler T. Reducing re-admission for asthma: impact of a nurse-led service. Paediatric Nursing. 2007;Vol 19(10):19-21

  • Kengne AP, Sobngwi E, Fezeu L, Awah PK, Dongmo S, Mbanya J. Setting-up nurse-led pilot clinics for the management of non-communicable diseases at primary health care level in resourcelimited settings of Africa. Pan African Medical Journal. 2009: Vol 3: 1-10

  • Kengne AP, Sobngwi E, Fezeu L, Awah PK, Dongmo S, Mbanya J. Nurse-Led Care for Asthma at Primary Level in Rural Sub-Saharan Africa: The Experience of Bafut in Cameroon. Journal of Asthma.2008 Aug; Vol. 45(6):437-443

  • Scott PA.A nurse-led palpitations clinic: a 2-year experience. Postgraduate Medical Journal. 2010 Jan; Vol. 86(1011):3-7

  • Al-Dawoud M, Thompson L, Al-Khaffaf H. Evaluation of a telephone clinic for patients with intermittent claudication. British Journal of Nursing (BJN). 2009; Vol. 18(8):495-497

  • Huang DY, Ong CM, Walters HL, Wilkins CJ, Evans DR, Edmondson RD, Jones K, Rashid HI, Deane CD, Goss DE, Sidhu PS. Day-case diagnostic and interventional peripheral angiography: 10-year experience in a radiology specialist nurse-led unit. British Journal of Radiology. 2008 Jul; Vol. 81(967):537-544

  • Moore E, Williams A, Manias E, Varigos G. Nurseled clinics reduce severity of childhood atopic eczema: a review of the literature. British Journal of Dermatology, 2006 Dec; Vol. 155(6):1242-1248

  • Pagels AA, Wång M, Wengström Y. The Impact of a Nurse-Led Clinic on Self-Care Ability, Disease-Specific Knowledge, and Home Dialysis Modality. Nephrology Nursing Journal, 2008May/Jun; Vol. 35(3):242-248

  • Tanyl RA. Sickle Cell Disease: Health Promotion and Maintenance and the Role of Primary Care Nurse Practitioners. Journal of the Academy of Nurse Practitioners. 2003; Vol 15(9):389-97

  • Pitts M. The Psychology of Health: An Introduction, 2nd edition, Routledge, London. 1998.

  • Curtis AJ. Health Psychology. Routledge, London. 2000.

  • Whithead DA. Social Cognitive Model for Health Education / Health Promotion Practice. Journal of Advanced Nursing. 2001; Vol 36(3):417-25

  • Killeen MB, King IM. Viewpoint: Use of King’s Conceptual System, Nursing Informatics and Nursing Classification Systems for Global Communication. International Journal of Nursing Terminologies and Classifications. 2007; Vol 18(2):51-60

  • Frey MA, Sieloff CL. Advancing King’s Systems Theory and Framework. Thousand Oaks. CA: Sage. 1995.

  • Narayanasamy A. The puzzle of spirituality for nursing: A guide to practical assessment. British Journal of Nursing. 2004;13(19):1140–1144. 24. Cole A. A model approach to health promotion. 1995; Vol 26: 14-16

  • Alder B. Psychology of Health: Application of Psychology for Health Professionals. Harward Academic Publishers, London. 1995.

  • Lee LR, Askew R, et al. Adults with sickle cell disease: an interdisciplinary approach to home care and self-care management with a case study. Home Healthcare Nurse. 2012; 30(3): 172-183.

  • Leschke J, Panepinto JA, et al. Outpatient followup and re-hospitalizations for sickle cell disease patients. Pediatric Blood & Cancer. 2012; 58(3): 406-409.

  • Tawfic QA, Kausalya R, Al Sajee D, B urad J, Mohammed AK, Narayanan A. Adult Sickle Cell Diseaase: A Five year experience of Intensive Care Management in a University Hospital in Oman. Sultan Qaboos University Medical Journal. 2012 May; 12(2)

  • Al Kindi S, Pathare A, Al Madhani A, Al Zadjali S, Al Hadddabi H, Al Abri Q, et al. Neonatal Screening: Mean hemoglobin and red cell indices in cord blood from Omani neonates. Sultan Qaboos University Medical Journal. 2011; 11: 462-469


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  • Conceptual Framework for Quality Care among Clients with Sickle Cell Disease through Nurse-Led Information Desk

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Authors

Melba Sheila D'Souza
Assistant Professor, Department of Adult Health and Critical Care, College of Nursing, Sultan QaboosUniversity, Muscat

Abstract


Sickle cell disease (SCD) is an inherited disease caused by an abnormal type of haemoglobin. It is one of the most common genetic blood disorders in the Gulf region, including Oman. The disease progresses through remissions and exacerbations and its intensity ranges from intense pain episodes to multi-system failure requiring admissions in the intensive care units (ICU). Many of these patients require frequent contact with the healthcare system and often find it difficult, or even impossible, to coordinate with all the required supportive services (physiotherapist, occupational therapist, dietician, etc) without assistance. Nurses are uniquely qualified to assume the responsibility of patient care coordination. The needs of SCD patients are diverse and comprises of pain management, transfusion&chelation therapy compliance, preventive of primary care issues and education. A Nurse-led information desk will serve as a useful vehicle in disseminating and modulating these issues. This store house of information aims at improving the Quality of Life among the SCD patients and also envisions at reducing the incidence of SCD in Oman. This paper conceptualizes the Nurse-led information and highlights the significance of such a structure in helping patients and their families manage the daily needs of living with a chronic disease. The conclusion emphasizes on the urgent establishment of this information desk to provide education and coordination services for the quantitative and qualitative improvement in the life-expectancy of patients with SCD in Oman. The empowering of the SCD patients and their communities will reflect in decreased re-hospitalizations and cost containment for the health care industry, which are the essence of quality care management.

Keywords


Nurse-led Information Desk, Clinical Nursing Practice, Sickle Cell Disease, Quality Care, Oman

References