Indian Journal of Positive Psychology

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Caregiver Burden and Coping Strategies among Parents of Special Children


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1 Department of Psychology, Bharathiar University, Coimbatore, Tamil Nadu, India
     

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Taking care of special children is a more challenging task. Handling a dependent child requires more inner resources and active efforts. Primary caregivers may experience the occurrence of multiple stressors in their day-to-day activities. All the stressors may enhance or worsen the caregiver's survival journey in a short period. All these hardships may affect their level of care for the children and also affect their functional areas, such as family, work, and social relations. To overcome these difficulties, caregivers use different strategies, and coping is one of them. The selection and use of appropriate coping mechanisms are essential in their lives. It is important to explore what kind of coping mechanism is more effective for primary caregivers and what is not accurate to them. The goal of the present study is to understand the relationship between caregiver burden and coping strategies among parents of special children. Purposive sampling was adopted, and it included a total sample of 65 in the age range between 22- 46. People who belong to the Chennai, Madurai, and Coimbatore districts of Tamil Nadu are considered for the study. The personal data sheet and standardized instruments were used to measure caregiver burden and coping. The study results showed that there is a significant relationship between caregiver burden and coping and that emotionfocused coping significantly predicted caregiver burden. The study results provide an insight into designing an appropriate psychological intervention to improve functional coping and caregiver burden.

Keywords

coping, caregiver burden, emotion-focused coping
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  • Aghebati, A., Gharraee, B., Shoshtari, M. H., & Gohari, M. R. (2014). Triple p-positive parenting program for mothers of ADHD children. Iranian Journal of Psychiatry and Behavioral Sciences, 8(1), 59.

  • Angriman, M., Caravale, B., Novelli, L., Ferri, R., & Bruni, O. (2015). Sleep in children with neurodevelopmental disabilities. Neuropediatrics, 46(03), 199-210.

  • Baird, G., & Norbury, C. F. (2016). Social (pragmatic) communication disorders and autism spectrum disorder. Archives of Disease in Childhood, 101(8), 745-751.

  • Barmann, C. M. (2015). The roles of self-efficacy and avoidant coping as partial mediators between perceived emotion regulation and depressive symptoms in alzheimer's family caregivers. Alliant International University.

  • Berry, A. B. (2012). The relationship of perceived support to satisfaction and commitment for special education teachers in rural areas. Rural Special Education Quarterly, 31(1), 3-14.

  • Bozkurt, G., Uysal, G., & Düzkaya, D. S. (2019). Examination of care burden and stress coping styles of parents of children with Autism Spectrum Disorder. Journal of Pediatric Nursing, 47, 142-147

  • Brobst, J. B., Clopton, J. R., & Hendrick, S. S. (2009). Parenting children with autism spectrum disorders: The couple's relationship. Focus on Autism and Other Developmental Disabilities, 24(1), 38-49.

  • Caicedo, C. (2014). Families with special needs children: Family health, functioning, and care burden. Journal of the American Psychiatric Nurses Association, 20(6), 398-407

  • Carver, C. S., & Vargas, S. (2011). Stress, coping, and health. In H. S. Friedman (Ed.), The Oxford handbook of health psychology (pp. 162-188). Oxford University Press.

  • Coping orientation to problems experienced inventory (Brief-COPE) (2021, August 10). Retrieved from https://novopsych.com.au/assessments/formulation/brief-cope

  • Cultural adaptation of the brief COPE for persons living with HIV/AIDS in southern India (n.d.). PubMed Central (PMC). https://www.ncbi.nlm.nih.gov/pmc/articles/ PMC4320041

  • DeHoff, B. A., Staten, L. K., Rodgers, R. C., & Denne, S. C. (2016). The role of online social support in supporting and educating parents of young children with special health care needs in the United States: a scoping review. Journal of Medical Internet Research, 18(12), e6722.

  • De Schipper, J. C., Tavecchio, L. W., & Van IJzendoorn, M. H. (2008). Children's attachment relationships with day care caregivers: Associations with positive caregiving and the child's temperament. Social Development, 17(3), 454-470.

  • Dockrell, J. E., & Howell, P. (2015). Identifying the challenges and opportunities to meet the needs of children with speech, language and communication difficulties. British Journal of Special Education, 42(4), 411-428.

  • Esdaile, S. A. (2010). A focus on mothers, their children with special needs and other caregivers. Australian Occupational Therapy Journal, 41(1), 3-8.

  • Eskenazi, B., & Castorina, R. (1999). Association of prenatal maternal or postnatal child environmental tobacco smoke exposure and neurodevelopmental and behavioral problems in children. Environmental Health Perspectives, 107(12), 991-1000.

  • Forbes, H., & Dziegielewski, S. F. (2003). Issues facing adoptive mothers of children with special needs. Journal of Social Work, 3(3), 301-320.

  • Ganjiwale, D., Ganjiwale, J., Sharma, B., & Mishra, B. (2016). Quality of life and coping strategies of caregivers of children with physical and mental disabilities. Journal of Family Medicine and Primary Care, 5(2), 343.

  • Ghane, G., Farahani, M. A., Seyedfatemi, N., & Haghani, H. (2016). Effectiveness of problem-focused coping strategies on the burden on caregivers of hemodialysis patients. Nursing and Midwifery Studies, 5(2), 1-11.

  • Grant, G., & Whittell, B. (2000). Differentiated coping strategies in families with children or adults with intellectual disabilities: The relevance of gender, family composition and the life span. Journal of Applied Research in Intellectual Disabilities, 13(4), 256-275

  • Hall, H. R., & Graff, J. C. (2011). The relationships among adaptive behaviors of children with autism, family support, parenting stress, and coping. Issues in Comprehensive Pediatric Nursing, 34(1), 4-25.

  • Hartley, S. O. V. P., Ojwang, P., Baguwemu, A., Ddamulira, M., & Chavuta, A. (2005).How do carers of disabled children cope? The Ugandan perspective. Child: Care, Health and Development, 31(2), 167-180.

  • Hsieh, R. L., Huang, H. Y., Lin, M. I., Wu, C. W., & Lee, W. C. (2009). Quality of life, health satisfaction and family impact on caregivers of children with developmental delays. Child: Care, Health and Development, 35(2), 243-249.

  • Iavarone, A., Ziello, A. R., Pastore, F., Fasanaro, A. M., & Poderico, C. (2014). Caregiver burden and coping strategies in caregivers of patients with Alzheimer's disease. Neuropsychiatric Disease and Treatment, 10, 1407.

  • Indeed Editorial Team. (2020, February 4). What is correlation? (With definition and examples). Indeed Career Guide. https://www.indeed.com/career-advice/career development/correlation-definition-and-examples

  • Karande, S., Mehta, V., & Kulkarni, M. (2007). Impact of an education program on parental knowledge of specific learning disability. Indian Journal of Medical Sciences, 61(7), 398-406.

  • Kazemi, A., Azimian, J., Mafi, M., Allen, K. A., & Motalebi, S. A. (2021). Caregiver burden and coping strategies in caregivers of older patients with stroke. BMC Psychology, 9(1), 1-9.

  • Kim, J. H., Knight, B. G., & Longmire, C. V. F. (2007). The role of familism in stress and coping processes among African American and White dementia caregivers: effects on mental and physical health. Health Psychology, 26(5), 564.

  • Li, R., Cooper, C., Bradley, J., Shulman, A., & Livingston, G. (2012). Coping strategies and psychological morbidity in family carers of people with dementia: Asystematic review and meta-analysis. Journal of Affective Disorders, 139(1), 1-11.

  • Lin, L. Y. (2015). Coping strategies, caregiving burden, and depressive symptoms of Taiwanese mothers of adolescents with autism spectrum disorder. Research in Autism Spectrum Disorders, 15, 1-9.

  • Liu, M., Lambert, C. E., & Lambert, V. A. (2007). Caregiver burden and coping patterns of Chinese parents of a child with a mental illness. International Journal of Mental Health Nursing, 16(2), 86-95.

  • Looman, W. S., O'Conner-Von, S. K., Ferski, G. J., & Hildenbrand, D. A. (2009). Financial and employment problems in families of children with special health care needs: Implications for research and practice. Journal of Pediatric Health Care, 23(2), 117-125.

  • Lyons, A. M., Leon, S. C., Roecker Phelps, C. E., & Dunleavy, A. M. (2010). The impact of child symptom severity on stress among parents of children with ASD: The moderating role of coping styles. Journal of Child and Family Studies, 19(4), 516524

  • Maggio, M. G., La Rosa, G., Calatozzo, P., Andaloro, A., Foti Cuzzola, M., Cannavò, A., & Calabrò, R. S. (2021). How COVID-19 has affected caregivers'burden of patients with dementia: An exploratory study focusing on coping strategies and quality of life during the lockdown. Journal of Clinical Medicine, 10(24), 5953.

  • Manor-Binyamini, I. (2011). Mothers of children with developmental disorders in the Bedouin community in Israel: Family functioning, caregiver burden, and coping abilities. Journal of Autism and Developmental Disorders, 41(5), 610-617.

  • Maridal, H. K., Bjørgaas, H. M., Hagen, K., Jonsbu, E., Mahat, P., Malakar, S., & Dørheim, S. (2021). Psychological distress among caregivers of children with neurodevelopmental disorders in Nepal. International Journal of Environmental Research and Public Health, 18(5), 2460.

  • McDowell, M. (2018). Specific learning disability. Journal of Paediatrics and Child Health, 54(10), 1077-1083.

  • McGrew, J. H., & Keyes, M. L. (2014). Caregiver stress during the first year after diagnosis of an autism spectrum disorder. Research in Autism Spectrum Disorders, 8(10), 1373-1385.

  • Menati, L., Torabi, Y., Andayeshgar, B., & Khatony, A. (2020). The relationship between carevburden and coping strategies in caregivers of hemodialysis patients in Kermanshah, Iran. Psychology Research and Behavior Management, 13, 133.

  • Monteiro, A. M. F., Santos, R. L., Kimura, N., Baptista, M. A. T., & Dourado, M. C. N.(2018). Coping strategies among caregivers of people with Alzheimer disease: A systematic review. Trends in Psychiatry and Psychotherapy, 40, 258-268

  • Murphy, M. A., & Ruble, L. A. (2012). Acomparative study of rurality and urbanicity on access to and satisfaction with services for children with autism spectrum disorders.Rural Special Education Quarterly, 31(3), 3-11.

  • Naemi, A. M. (2018). Effectiveness of positive psychology intervention on selfforgiveness and resilience in mothers of children with learning disabilities. Journal of Exceptional Children, 18(2), 23-38.

  • Psychometrics of the Zarit burden interview in caregivers of patients with heart failure (2016, November). PubMed Central (PMC). https://www.ncbi.nlm.nih.gov/pmc/a rticles/PMC5069100

  • Rani, S., Ehsan, S., & Arshad, H. S. (2016). Level of stress and caregiver burden among caregivers of cerebral palsy children in Lahore City. International Journal of Science and Research (IJSR), 5(4), 2243-2247

  • Ray, D., Bratton, S., Rhine, T., & Jones, L. (2001). The effectiveness of play therapyResponding to the critics. International Journal of Play Therapy, 10(1), 85.

  • Rolison, M. J., Naples, A. J., & McPartland, J. C. (2015). Interactive social neuroscience to study autism spectrum disorder. The Yale Journal of Biology and Medicine, 88(1),17-24.

  • Singh, N. N., Lancioni, G. E., Winton, A. S., Singh, J., Curtis, W. J., Wahler, R. G., & McAleavey, K. M. (2007). Mindful parenting decreases aggression and increases social behavior in children with developmental disabilities. Behavior modification, 31(6), 749-771.

  • Skinner, A. C., & Slifkin, R. T. (2007). Rural/urban differences in barriers to and burden of care for children with special health care needs. The Journal of Rural Health, 23(2), 150-157.

  • Sperling, S., & Mowder, B. A. (2006). Parenting perceptions: Comparing parents of typical and special needs preschoolers. Psychology in the Schools, 43(6), 695-700.

  • Spratt, E. G., Saylor, C. F., & Macias, M. M. (2007). Assessing parenting stress in multiple samples of children with special needs (CSN). Families, Systems, and Health, 25(4), 435.

  • Stuart, M., & McGrew, J. H. (2009). Caregiver burden after receiving a diagnosis of anautism spectrum disorder. Research in Autism Spectrum Disorders, 3(1), 86-97.

  • Tadema, A. C., & Vlaskamp, C. (2010). The time and effort in taking care for children with profound intellectual and multiple disabilities: A study on care load and support. British Journal of Learning Disabilities, 38(1), 41-48.

  • Tsai, S. M., & Wang, H. H. (2009). The relationship between caregiver's strain and social support among mothers with intellectually disabled children. Journal of Clinical Nursing, 18(4), 539-548.

  • Van Dyck, P. C., Kogan, M. D., McPherson, M. G., Weissman, G. R., & Newacheck, P. W. (2004). Prevalence and characteristics of children with special health care needs. Archives of Pediatrics and Adolescent Medicine, 158(9), 884-890.

  • Walsh, E., Holloway, J., & Lydon, H. (2018). An evaluation of a social skills intervention for adults with autism spectrum disorder and intellectual disabilities preparing for employment in Ireland: A pilot study. Journal of Autism and Developmental Disorders, 48(5), 1727-1741.

  • Wang, P., Michaels, C. A., & Day, M. S. (2011). Stresses and coping strategies of Chinese families with children with autism and other developmental disabilities. Journal of Autism and Developmental Disorders, 41(6), 783-795.

  • What are the 5 types of coping skills? - Monarch (n.d.). Find the right therapist and book online Today-Monarch. Https://meetmonarch.com/faq/coping-skills/what-are-the5-types-of-coping-skills.


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  • Caregiver Burden and Coping Strategies among Parents of Special Children

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Authors

Danu Jaffrin A
Department of Psychology, Bharathiar University, Coimbatore, Tamil Nadu, India
M. Vinothkumar
Department of Psychology, Bharathiar University, Coimbatore, Tamil Nadu, India
Anjo George
Department of Psychology, Bharathiar University, Coimbatore, Tamil Nadu, India

Abstract


Taking care of special children is a more challenging task. Handling a dependent child requires more inner resources and active efforts. Primary caregivers may experience the occurrence of multiple stressors in their day-to-day activities. All the stressors may enhance or worsen the caregiver's survival journey in a short period. All these hardships may affect their level of care for the children and also affect their functional areas, such as family, work, and social relations. To overcome these difficulties, caregivers use different strategies, and coping is one of them. The selection and use of appropriate coping mechanisms are essential in their lives. It is important to explore what kind of coping mechanism is more effective for primary caregivers and what is not accurate to them. The goal of the present study is to understand the relationship between caregiver burden and coping strategies among parents of special children. Purposive sampling was adopted, and it included a total sample of 65 in the age range between 22- 46. People who belong to the Chennai, Madurai, and Coimbatore districts of Tamil Nadu are considered for the study. The personal data sheet and standardized instruments were used to measure caregiver burden and coping. The study results showed that there is a significant relationship between caregiver burden and coping and that emotionfocused coping significantly predicted caregiver burden. The study results provide an insight into designing an appropriate psychological intervention to improve functional coping and caregiver burden.

Keywords


coping, caregiver burden, emotion-focused coping

References





DOI: https://doi.org/10.15614/ijpp%2F2022%2Fv13i4%2F218356